Express and Echo article 02/07/07

Charity bid for hi-tech link

A CHARITY which helps Cystic Fibrosis sufferers is being launched in Exmouth.

East Devon Cystic Fibrosis Quality of Life Fund steps in to help sufferers where the NHS and the Cystic Fibrosis Trust, the main charity concerned with the disease, is unable to help.

At the Charity’s official launch at the Devoncourt Hotel on July 14, a scheme will be unveiled to link fellow sufferers through technology, because infection risks mean they cannot meet in person.
Charity founder Denise Murphy, whose daughter Katie, nine, has Cystic Fibrosis, is writing to Sarah Brown, wife of new Prime Minister Gordon Brown, asking her to attend the launch event.  The Brown’s son Fraser is also a Cystic Fibrosis sufferer.

She said: “People with the disease are at risk of cross infection from each other. Consequently, children and adults have to deal with their condition in total isolation.  Katie finds this difficult.  She just wants to be friends with someone who has to put up with the same regime as her.

“We want to give children and young people the chance to speak to each other via technology.  We would like to provide CF people with laptops, Skype equipment or similar and a safe website n which to contact and see each other via webcams.”

Express & Echo article Monday 2 July 2007