The 2012 Ten Tors Challenge, with a difference!

Posted by in 2012, Fundraising Events, Latest Campaigns, News & Events | 0 comments Can you join the East Devon Cystic Fibrosis Quality of Life Fund’s attempt to climb the equivalent of the ten highest tors on Dartmoor? Although the challenge will be tough, but remember, it will not be as tough as living with Cystic Fibrosis daily! Come and join us at the Quay Climbing Centre – who are kindly hosting us for the days – on Monday 2nd July 5-10pm, Wednesday 4th...
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Pari e-Flow Rapid Nebuliser

Posted by in Latest Campaigns | 0 comments This wonderful new piece of equipment has already revolutionised inhaled medication for people with CF.  It takes a fraction of the time of the old nebulisers, is completely silent, totally portable, very light and all used pieces can be sterilised.  This Fund was originally set up to provide all the children who needed nebulised drug therapy to have a better quality of life with such equipment...
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Our children with CF need access to each other….

Posted by in Latest Campaigns | Comments Off on Our children with CF need access to each other…. It is to this end that we would like to campaign to get all the children provided with a computer , internet access, web cam and a secure messaging site where they can let off steam and speak to each other about their lives including their CF. When our children were born there were varying degrees of promise of a cure for cystic fibrosis ‘in the not to distant future’. This is...
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