Speech given by Dr Simon Robertson, Consultant Paediatrician at the RD&E at the Launch July 2007

Posted by admin in 2007 | Comments Off on Speech given by Dr Simon Robertson, Consultant Paediatrician at the RD&E at the Launch July 2007 Extract of speech by Dr Simon Robertson, Paediatric Consultant at the RD&E at the launch of the EDCF Quality of Life Fund, The Devoncourt Hotel, Exmouth, Devon on Saturday 14th July 2007 “I would like to say a few words about Cystic Fibrosis and the effect it has on children, adults and their families and friends. As all those of us who look after people with CF know the condition does...
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CF Trust Newsletter Contact

Posted by admin in 2007 | Comments Off on CF Trust Newsletter Contact East Devon CF Newsletters. Sophie Knight is employed by the CF Trust as an expert patient advisor for this area. She edits the newsletter along with Jackie Collins. Sophie can be contacted at the CF Trust. www.cftrust.org.uk
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Express and Echo article 02/07/07

Posted by admin in 2007 | 0 comments Charity bid for hi-tech link A CHARITY which helps Cystic Fibrosis sufferers is being launched in Exmouth. East Devon Cystic Fibrosis Quality of Life Fund steps in to help sufferers where the NHS and the Cystic Fibrosis Trust, the main charity concerned with the disease, is unable to help. At the Charity’s official launch at the Devoncourt Hotel on July 14, a scheme will be unveiled to link...
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South West Coast Path Challenge 2006 – £11,000 raised

Posted by admin in 2007 | 0 comments Our Fundraising has been reached in record time – a big thank you to everyone who has helped make this happen. We will continue our campaign until the end of the year as there is still much work to be done. Please continue with your efforts in the knowledge you are making a difference.
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Gordon Brown’s Baby has Cystic Fibrosis

Posted by admin in 2007 | 0 comments Gordon and Sarah Brown`s Son has CF Chancellor Gordon Brown says he and his wife Sarah feel upbeat about their son’s future after revealing four-month-old Fraser has been diagnosed with cystic fibrosis. Mr Brown received messages of support from political allies and opponents, with Tony Blair and Tory leader David Cameron among the first to offer his best wishes. In a very positive...
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Registered Charity Approval july 2007

Posted by admin in 2007 | 0 comments On 5th July 2007 the EDCF Quality of Life Fund was entered in the Central Register of Charities.  Its Registered Charity number is 1119957.
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Launch 14th July 2007

Posted by admin in 2007 | 0 comments We are launching our Quality of Life Fund at The Devoncourt Hotel, Exmouth at 11.00am.  The Medical team will be there to judge the ‘design a logo’ competition for the Fund and the press will also be there to help inform you of our plight.  Coffee and biscuits will be served.
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Indian Summer Boat Cruise £1,500 raised. Thank you.

Posted by admin in 2007 | 0 comments Would you like to take an evening boat cruise up the river Exe on a Summer’s evening? The Indian Summer Boat Cruise will be setting sail from Exmouth Marina on Friday 14th September 2007 at 7.30pm.  Tickets are £20 and include food and music.  Drinks will be available to purchase from the on-board bar and there will be a Raffle.  Tickets will be on sale at the Stuart Line Cruise office situated...
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Terry and Michelle are getting married.

Posted by admin in 2007 | 0 comments Michelle is our daughter Katie’s auntie and godmother. Terry is one of our best friends and was also our best man. They are a huge support to our family and we wish them a wonderful life together. Thank you to those people who have already sent a donation : Colin & Sue, Jane & Chris, Pat & Paul McCarthy and Suzanne & Rob Atkinson. If you haven’t filled in a gift aid...
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