Gordon Brown’s Baby has Cystic Fibrosis

Posted by in 2007 | 0 comments Gordon and Sarah Brown`s Son has CF Chancellor Gordon Brown says he and his wife Sarah feel upbeat about their son’s future after revealing four-month-old Fraser has been diagnosed with cystic fibrosis. Mr Brown received messages of support from political allies and opponents, with Tony Blair and Tory leader David Cameron among the first to offer his best wishes. In a very positive...
read more

Registered Charity Approval july 2007

Posted by in 2007 | 0 comments On 5th July 2007 the EDCF Quality of Life Fund was entered in the Central Register of Charities.  Its Registered Charity number is 1119957.
read more

Launch 14th July 2007

Posted by in 2007 | 0 comments We are launching our Quality of Life Fund at The Devoncourt Hotel, Exmouth at 11.00am.  The Medical team will be there to judge the ‘design a logo’ competition for the Fund and the press will also be there to help inform you of our plight.  Coffee and biscuits will be served.
read more

Indian Summer Boat Cruise £1,500 raised. Thank you.

Posted by in 2007 | 0 comments Would you like to take an evening boat cruise up the river Exe on a Summer’s evening? The Indian Summer Boat Cruise will be setting sail from Exmouth Marina on Friday 14th September 2007 at 7.30pm.  Tickets are £20 and include food and music.  Drinks will be available to purchase from the on-board bar and there will be a Raffle.  Tickets will be on sale at the Stuart Line Cruise office situated...
read more

Terry and Michelle are getting married.

Posted by in 2007 | 0 comments Michelle is our daughter Katie’s auntie and godmother. Terry is one of our best friends and was also our best man. They are a huge support to our family and we wish them a wonderful life together. Thank you to those people who have already sent a donation : Colin & Sue, Jane & Chris, Pat & Paul McCarthy and Suzanne & Rob Atkinson. If you haven’t filled in a gift aid...
read more

26 Apr 2008 – South West Coastal Path Walk – News so far…..

Posted by in 2008 | 0 comments Well done all of you who took part in this year’s South West Coastal Path Walk.  We had over 150 walkers sign up to walk various stretches of the Path from Minehead to Poole and so far, a fantastic £6,500 has been received in sponsor monies and donations.  Thank you all.  We do hope to put some photographs you have kindly sent in on the website shortly.  Watch this space!
read more

6 Sep 2008 – Indian Summer Evening Boat Cruise

Posted by in 2008 | 0 comments Dance the evening away to DJ Paul King on the Stuart Line’s Pride of Exmouth and tuck into some delicious BBQ food whilst sailing up the River Exe on a balmy September evening.  Tickets are £20 each, which includes the Disco, BBQ and also there will be live entertainment from Exeter Band The Embezzlers.  ThUse the well stocked on board bar to quench your thirst and there will be a Charity...
read more

The Boat that Rocks!

Posted by in 2009 | Comments Off on The Boat that Rocks! Join us for an evening Boat Trip up the River Exe on board the Pride of Exmouth, dancing to the music of El Cojones.  Comedy with Comedian and Compere Dave Wells. Mega Raffle with lots of great prizes. Saturday 27th June 20009 Tickets £12 available from The Emporium, 31 Heavitree Road, Exeter  Tel: 01392 277417
read more

Pari e-Flow Rapid Nebuliser

Posted by in Latest Campaigns | 0 comments This wonderful new piece of equipment has already revolutionised inhaled medication for people with CF.  It takes a fraction of the time of the old nebulisers, is completely silent, totally portable, very light and all used pieces can be sterilised.  This Fund was originally set up to provide all the children who needed nebulised drug therapy to have a better quality of life with such equipment...
read more

Our children with CF need access to each other….

Posted by in Latest Campaigns | Comments Off on Our children with CF need access to each other…. It is to this end that we would like to campaign to get all the children provided with a computer , internet access, web cam and a secure messaging site where they can let off steam and speak to each other about their lives including their CF. When our children were born there were varying degrees of promise of a cure for cystic fibrosis ‘in the not to distant future’. This is...
read more