The Quality of Life Fund has been set up by a group of parents, all of whom have children with the life threatening disease Cystic Fibrosis. The EDCF fund has been created to help people with Cystic Fibrosis who live in the East Devon area to enhance their quality of life. This could be by helping with the cost towards a piece of medical equipment or treatment that is not available through the hospital or CF Trust. So far we have provided resources and equipment to several people with CF and lots of E-Flow Rapid nebulisers. www.pari.com
We need continual fund raising to ensure that money is available to help take the burden out of living with CF on a daily basis.
Do you think you could help us?
A competition was held where all patients, siblings and friends were asked to design a logo for the Quality of Life Fund. At our official launch of the Charity in July 2007 at The Devoncourt Hotel, Exmouth, members of the CF Team at the RD&E, Sarah Elworthy, Dr Nick Withers and Dr Simon Robertson chose the following entry.
See all the other fantastic entries here (link to gallery of designs)
Our official logo has now evolved from this and will be on all correspondence, t-shirts etc.
The EDCF Quality of Life Fund is not in competition with the CF Trust for funding, but is aiming to work alongside the CF Trust and give half of our annual fundraising monies to the Trust. We will aim to produce literature and leaflets with both the CF logo and our own.
Philosophically we are trying to make a bridge between the medical model of disability and the social model of disability.